Category Archives: Facing Alzheimers/Dementia in a loved one

Five Principles I Learned in Writing My Memoir by Linda Brendle

Posted by Kathleen Pooler/@kathypooler with Linda Brendle/@lindabrendle

 

” It breaks my heart to see her disappearing a piece at a time into the abyss of this disease.”– Linda Brendle, A Long and Winding Road: A Caregiver’s Tale of Life,Love and Chaos, 2014.

 

As a health care provider, I know that caring for a loved one who suffers from Alzheimer’s and/or Dementia is one of the most challenging conditions faced by families. When I read about Linda Brendle’s memoir of not only caring for both parents, one with Alzheimer’s and the other with Dementia, but taking them on a seven-week road trip in an RV, I knew I had to read her memoir and learn more about her experience.  

It is my pleasure to participate in Linda’s Virtual Blog Tour and to  feature her in this guest post about her memoir, A Long and Winding Road: A Caregiver’s Tale of  Life, Love and Chaos and the five principles she learned  through her writing.

ALAWR Blog Tour Image
ALAWR Blog Tour

My reviews can be found on Amazon, Goodreads, Shelfari and LibraryThings.

 

Welcome, Linda!

 

Author Photo_Linda Brendle
Memoir Author Linda Brendle

 Five Principles I Learned in Writing My Memoir

Cover_ A Long and Winding Road

 

About My Memoir:

A LONG AND WINDING ROAD: A Caregiver’s Tale of Life, Love, and Chaos is the story of a seven-week, sixteen-state RV trip. It is the story of the drama and hilarity that happen when two new RV owners and two people with dementia spend fifty-three days inside a four-hundred-square-foot box on wheels.

 

I didn’t really set out to write a memoir, but when I became a real hands-on caregiver, especially after Mom and Dad moved in with us, I often went to my aunt for advice. She cared for both her mother and her husband for many years, so she had experience to back up her advice. One thing she told me was to keep a journal, because one day my experiences might be of help to someone else. I didn’t write every day, but after a particularly trying episode, I would write about it and post it on Facebook. People responded positively, and that encouraged me to continue to write.

 

When we planned our epic trip, I decided to keep a daily journal. A couple of weeks into the trip, I mentioned the journal to Christian Piatt, my son and a fellow writer. He suggested I expand it into a story, not just of the trip but of our lives. He continued to work with me, encouraging me to put more of myself into the story and helping me find ways to focus my story.

 

The main way to focus a memoir is to decide who your target audience will be, what kind of people you imagine will ultimately read your book. In my case, my target audience was the sixty-eight million Baby Boomers who are at or nearing retirement age, the twenty-three to fifty-two million caregivers, depending on your definition of a caregiver, and the eight million RV owners in the United States.

 

Once you have identified your audience, the next step is to determine what you want to tell that audience, what message you want to communicate to them. While you may think every detail of your life is extremely interesting and significant, unless you are a mega star or a super celebrity, you will need to give your readers a reason to care about your story.

 

In my case, I wanted to touch those who needed encouragement, inspiration, or a little laughter in their lives. My book offers an entertaining read to anyone who loves a good travel story. However, it also offers caregivers the comfort of knowing they are not alone, the permission to admit that caregiving is hard, and the realization that sometimes you just have to laugh. It encourages them to take care of themselves and to continue to have a life of their own, and it offers the hope that, with God’s help, life can go on in spite of emotional difficulties, divorce, financial setbacks, and similar challenges.

 

While I was writing my memoir, I never really stopped to think about some of the steps I went through until recently. When one Twitter friend asked where I found the courage to write a memoir, and another asked how I dealt with sensitive material regarding friends and family, I spent some time pondering the process and wrote an article on the subject.

 

I’d like to share five principals I followed in writing my memoir.

 

1.      Know your motives. Why are you writing your story? Do you have a purpose in mind, or do you just want to vent and air your dirty laundry? There is a market for both types of memoir, but the first is less likely to get you in trouble with your loved ones.

 

2.      Tell your own story. If you’ve ever studied conflict resolution, you’re probably familiar with “I” messages. In any disagreement, it is important to speak about your own actions and feelings instead of assigning blame to someone else. In writing my memoir, I tried to tell my own story and leave others to tell theirs.

 

3.      Make your characters likable. The author of a memoir is not actually creating characters. However, she does have the ability to make her characters sympathetic or not, depending on how she presents them.

 

4.      Forgive before you write. When you sit down to write about a person who has hurt you in some way, be sure you have forgiven that person before you put your hands on the keyboard. As the author, you have complete control and can tell your story so that your readers will understand without a doubt who was the injured party and who the villain was, but you also have to be sure you’re prepared to accept the consequences. Is vindication worth ruining a relationship?

 

5.      Speak the truth in love. If a memoir author skirts the truth in order to spare feelings, her story will not ring true. On the other hand, as she tells the truth, she must do so with love.

 

It took several years for my manuscript to grow from a handwritten journal to a published memoir. There were lots of edits and lots of growing pains–maybe the next one will be easier.

***

Thank you for sharing so many valuable memoir writing tips, Linda. Your five principles will resonate with anyone who has the desire to write and share their story. 

 

 

Author Bio:

Linda Brendle began life in a tiny west-Texas town that was so small the only clinic was on the second floor above a hardware store. She retired sixty-four years later to another tiny town in east Texas. In between she lived in and around Dallas and Tampa. She has one son and two beautiful grandchildren, and has been married to David, the love of her life, for fourteen years. She is a life-begins-at-fifty kind of gal. She received her Bachelor’s Degree at fifty-one,  learned to ride a motorcycle at fifty-five, and finished her first book after she started collecting Social Security. She can’t wait to see what the next couple of decades bring.

Author Contact Information:

Twitter @lindabrendle

Website: lifeaftercaregiving.wordpress.com

Facebook: Linda Robinson Brendle

Links to the Book:

ALAWR up on UK Amazon! http://www.amazon.co.uk/Long-Winding-Road-Caregivers-Chaos-ebook/dp/B00LDV3W50/ref=sr_1_1?ie=UTF8&qid=1404173365&sr=8-1&keywords=Linda+Brendle

US Amazon with a review http://www.amazon.com/Long-Winding-Road-Caregivers-Chaos-ebook/dp/B00LDV3W50/ref=sr_1_1?ie=UTF8&qid=1404173447&sr=8-1&keywords=Linda+Brendle

 

How about you?  Have you ever had to care for a loved one with Alzheimer’s or Dementia and written about the experience? Do Linda’s memoir writing principles match your experience?

 

Linda and her publisher at Anaiah Press have graciously agreed to give away a copy of  Linda’s memoir, A Long and Winding Way to a commenter whose name will be selected in a random drawing of commenters.

 

We’d love to hear from you. Please leave your comments below~

 

Next Week: 

Monday, 7/21/14: “Finding Forgiveness While Writing a Memoir” by Memoir Writer Joan Z Rough

 

 

 

 

 

 

 

 

 

The Face of Alzheimer’s Dementia: A Memoir Moment

Posted by Kathleen Pooler/@kathypooler

“we argue again

over nothing important

neither understands

we talk of different pieces

of the same scary puzzle”

Poems That Come To Mind: For those who love someone with dementia

Linda E. Austin, Moonbridge Publications, 2012

Alzheimer’s disease (AD) is the most common form of dementia. The cause and progression of AD are not well-understood and the symptoms are degenerative. Current treatments are limited and only treat the symptoms. The Alzheimer sufferer relies on others for assistance and the disease is known for placing a great burden on caregivers.

My dear friend, Louise, knows first-hand what Alzheimer’s Dementia looks like. Tony,her husband of 48 years was diagnosed five years ago. She started noticing signs of decline five years before his diagnosis was confirmed

Louise is an inspiration to me. I told her she inspired me so much that I would dedicate a blog post to her.

I feel certain she will be an inspiration to anyone who has to face the devastating impact of Alzheimer’s/Dementia on a loved one.

She has a very positive attitude and has simply made up her mind to be happy in her life and make the most of what life has dealt her.

 

Here she is posing with Audrey Hepburn at the wax museum in London a few years ago.

 

Louise and Audrey having tea
Louise and Audrey having tea

She tries to maintain a positive attitude as you will see in this recent update:

A new first for me: To get Tony to actually WASH when in the shower, today I got in with him. What an experience! Don’t worry, this isn’t x-rated. I tried to stand behind him and wash his head and ears and back, with lots of yelling on his part and cursing. It wasn’t easy to manage the water temperature this way and though the water never gets really hot, it can get too cool fast. However I managed with a lot of struggle to do a fairly good job and get him rinsed.

Then there was the cutting of the toe nails, finger nails, cleaning hair out of ears and nose and clipping his eyebrows and shaving off the werewolf hair on his neck. After helping him get dressed, I put toothpaste on his toothbrush and instructedhim to clean his teeth really good. Then I made the mistake of thinking he could really DO this. When I came back he was putting the toothpaste onto his face with the toothbrush, like for shaving. So, perhaps another new job is here for me.

This personal care business is something I really wish didn’t need to be done by me. It takes lots of time and energy and being I have so much to do all the time, I barely have an opportunity to take care of myself. I’m going to look into having someone come and do the personal hygiene business and see how that will work.

He still can feed himself though forgets how to use the utensils. We went out to eat the other day and this is rather frustrating so this is another thing we’ll have to give up soon.

I don’t want to think of a nursing home yet, as he really knows people and cares about them. TONY is still in there. It would be like abandoning him if I put him away someplace, and he’d always been a good husband and father and community person, so this doesn’t seem like the thing to do at this point.

I’m also thinking of bringing him to a day-program perhaps once a week for a few hours to try it out. It would be good for him to socialize, even though he really can’t talk, and be with other people besides me, and it would be good for me to have a few hours to myself, to focus on things that need to get done without interruptions, or to just “be” by myself for a bit.

That’s it for now. Life is challenging!

***

While having lunch with Louise before going to a show a few weeks ago, I wanted to share Linda Austin’s beautiful book, Poems That Come To Mind: For Those Who Love Someone With Dementia. Here are my reviews on Amazon and Goodreads.

While I admire Louise’s strength and positive attitude in the face of her husband’s cognitive decline, I can’t help but feel the pain and longing she must feel to have him back again. I felt the need to reach out and offer Linda’s poems to her.

Poems That Come To Mind by Linda Austin
Poems That Come To Mind book cover

 

When I read her the poems, I’d look up to see her nodding her head in recognition. For some reason , I felt consoled. Maybe it was the realization that Louise could feel she was not alone.

I feel the loss of the relationship we used to share with them as a couple. I can’t even imagine how Louise must feel.

Reading Linda’s poems was a vivid reminder to me of how we can impact others in a healing way through our words.

With a smile on her face, she thanked me and we went on to see the show.

***

Awareness of what to expect and support for the resulting confusion and heartbreak caregivers experience are essential for anyone who has a loved one with Alzheimer’s Dementia.

Linda lists the following resources for families and caregivers:

Alzheimer’s Association: http://www.alz.org/ 24-hour Helpline: 1.800.272.3900

Learning to Speak Alzheimer’s: A Groundbreaking Approach for Everyone Dealing with the Disease by Joanne Koenig Coste

Creating Moments of Joy by Jolene Brackey

The Memory People Facebook group

 

How about you? Do you have a friend or family member with dementia?

 

If so, please share your story of how you have been able to cope or help those you love cope with this heart-wrenching diagnosis. I’d love to hear from you~

 

Linda has graciously offered to give away a copy of her book to a random commenter

 

 

On Thursday, April 18: Memoir Author Pat McKinzie-Lechault will discuss her newly-launched memoir Home Sweet Hardwood. A lucky commenter whose name will be selected in a random drawing will receive a free copy.